I recently received a query regarding the HSE suopport for Ehlers Danlos Syndrome.
On foot of that I tabled the following question to the Minister for Health
To ask the Minister for Health the reason that the HSE will not approve surgical interventions for Ehlers Danlos Syndrome under the European Union Cross-Border Directive or the treatment abroad scheme; the treatments that are presently available in Ireland for patients; and if he will make a statement on the matter. -Denis Naughten
This was referred by the Minister to the HSE for direct reply.
The response is now available here: PQ2809622 Letter to Denis Naughten 1st June 2022 re EDS